Labs:
hgb: 8.9
hct: 25.5
phs:62
wbc: 4.1
anc: 5.1
I was hoping today we would be discharged and Max would be filling better, but last night and this morning Max has seemed like he has really struggled with the mouth sore pain. Last night he was so happy and talking all about the food he was going to order for breakfast, but then he was crying throughout the night and this morning asking to push the button. I ordered what we had talked about, but he didn't want any of it. His throat still hurts to swallow as well. We were also going to move to oral meds today to help wean him off, but he just doesn't seem like he is ready. He is having a nap now so hopefully he can wake up and feel better after that. We played with some fake snow and dinosaurs and a dinosaur sticker book that the child life specialist brought in. That made it kind of happy. We also have watched Frozen 1 and 2. He loves those movies a lot. We have watched the first Frozen more times than I can count. He loves to play with his little Paw Patrols figures and ask how they can help.
He is such a sweet little boy. Just looking at him today I just thought how sad it was that a sweet three year old little boy is having to deal with cancer and all that comes with it. I can't wait until we are on the other side of this.
I have definitely feel like I am not the same person I was before this all happened. I can see myself changing like being more confident in my decisions and not overthinking the littler things. I also realized I probably wasn't on the right track with trying to find more and more jobs. I just wanted a better income for our family, but it was taking away from my time with my family. Hopefully through all of these changes we can find the right thing for Cannon. He doesn't want to work at the cabinet shop forever, but we've had such a hard time finding him another job. I'm thankful that he has his job right now though because we get good insurance through CHIP that will help us tremendously when it comes to paying the bills for Maxwell's treatment.
Another blessing is that we are getting a good amount on our tax returns this year, and even though they canceled the basketball tournament they are still holding the fundraiser for Max and two other girls. That money should really help us since Cannon has had to take so much work off because of going with Max to the hospital and also staying home with the other kids to help prevent getting the coronavirus and bringing it home to our family. Cannon does a good job of sending me pics and videos of Felix and June. They are so precious and it makes my mommy heart so happy to see them.
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